Bill Overview
Title: SHINE for Autumn Act of 2022
Description: This bill authorizes grants and establishes other programs to improve data collection on stillbirths. Specifically, the Department of Health and Human Services (HHS) may award grants for surveillance and data collection on stillbirths, and HHS must issue guidelines for health departments and vital statistics units concerning the collection of stillbirth data. HHS must also develop educational awareness materials about stillbirths and make them publicly available. Furthermore, HHS must implement a fellowship program to provide training in perinatal autopsy pathology and otherwise support research on stillbirths and fetal autopsies. The bill also requires HHS to issue a report with educational guidelines on stillbirths and stillbirth risk factors.
Sponsors: Sen. Booker, Cory A. [D-NJ]
Target Audience
Population: People impacted by the Stillbirth Health Improvement and Education for Autumn Act of 2022
Estimated Size: 42000000
- Stillbirth affects about 1 in 160 births globally, which translates to around 2 million stillbirths annually worldwide.
- The bill addresses the improvement of data collection, educational awareness, and guidelines concerning stillbirths that can impact future parents and families.
- It specifically supports research and training in the area of perinatal pathology, potentially reducing stillbirth rates and improving family health outcomes.
Reasoning
- Stillbirth affects approximately 1 in 160 pregnancies, impacting many families each year. Research and education can help reduce these numbers and provide support for those affected.
- The policy focuses on data collection, education, and training, all of which can lead to improved health outcomes and awareness.
- Due to the specific focus on healthcare providers, families experiencing pregnancy, and researchers, the direct impact might be most evident in these groups.
- With a budget of $25 million in the first year, the policy will likely be able to fund a few pilot programs and begin to establish guidelines and educational materials.
Simulated Interviews
Obstetrician (Austin, TX)
Age: 32 | Gender: female
Wellbeing Before Policy: 6
Duration of Impact: 20.0 years
Commonness: 10/20
Statement of Opinion:
- As a healthcare provider, this policy is vital for my practice.
- Better data collection and more research will improve how we manage risk factors in pregnancies.
Wellbeing Over Time (With vs Without Policy)
| Year | With Policy | Without Policy |
|---|---|---|
| Year 1 | 7 | 6 |
| Year 2 | 8 | 6 |
| Year 3 | 8 | 7 |
| Year 5 | 9 | 7 |
| Year 10 | 9 | 8 |
| Year 20 | 9 | 8 |
Expectant Mother (New York, NY)
Age: 25 | Gender: female
Wellbeing Before Policy: 5
Duration of Impact: 10.0 years
Commonness: 8/20
Statement of Opinion:
- Awareness and education would ease my anxieties about stillbirth and how to prevent it.
- Having access to more comprehensive information will empower expecting mothers.
Wellbeing Over Time (With vs Without Policy)
| Year | With Policy | Without Policy |
|---|---|---|
| Year 1 | 6 | 5 |
| Year 2 | 6 | 5 |
| Year 3 | 7 | 5 |
| Year 5 | 8 | 6 |
| Year 10 | 8 | 7 |
| Year 20 | 9 | 8 |
Public Health Official (Chicago, IL)
Age: 45 | Gender: female
Wellbeing Before Policy: 6
Duration of Impact: 15.0 years
Commonness: 6/20
Statement of Opinion:
- Improved data can help shape better healthcare policies and reduce stillbirth rates.
- The grant could fund critical research and infrastructure improvements.
Wellbeing Over Time (With vs Without Policy)
| Year | With Policy | Without Policy |
|---|---|---|
| Year 1 | 6 | 6 |
| Year 2 | 7 | 6 |
| Year 3 | 8 | 7 |
| Year 5 | 8 | 7 |
| Year 10 | 9 | 8 |
| Year 20 | 9 | 8 |
Fetal Pathologist (Seattle, WA)
Age: 38 | Gender: male
Wellbeing Before Policy: 5
Duration of Impact: 10.0 years
Commonness: 5/20
Statement of Opinion:
- The fellowship program could greatly enhance research in stillbirth and its prevention.
- Training in fetal pathology is crucial for advancing medical knowledge and practices.
Wellbeing Over Time (With vs Without Policy)
| Year | With Policy | Without Policy |
|---|---|---|
| Year 1 | 7 | 5 |
| Year 2 | 8 | 5 |
| Year 3 | 9 | 6 |
| Year 5 | 9 | 7 |
| Year 10 | 10 | 8 |
| Year 20 | 10 | 9 |
Retired Nurse (Miami, FL)
Age: 60 | Gender: female
Wellbeing Before Policy: 6
Duration of Impact: 5.0 years
Commonness: 12/20
Statement of Opinion:
- I've seen firsthand how devastating stillbirths are for families.
- This policy could prevent future tragedies by educating the public.
Wellbeing Over Time (With vs Without Policy)
| Year | With Policy | Without Policy |
|---|---|---|
| Year 1 | 6 | 6 |
| Year 2 | 7 | 6 |
| Year 3 | 7 | 6 |
| Year 5 | 8 | 7 |
| Year 10 | 8 | 7 |
| Year 20 | 8 | 7 |
Data Analyst (Denver, CO)
Age: 29 | Gender: female
Wellbeing Before Policy: 6
Duration of Impact: 10.0 years
Commonness: 8/20
Statement of Opinion:
- The data collection aspect of the policy is promising.
- Better data can lead to better healthcare decisions and outcomes.
Wellbeing Over Time (With vs Without Policy)
| Year | With Policy | Without Policy |
|---|---|---|
| Year 1 | 6 | 6 |
| Year 2 | 6 | 6 |
| Year 3 | 7 | 6 |
| Year 5 | 8 | 7 |
| Year 10 | 9 | 8 |
| Year 20 | 9 | 8 |
Health Policy Analyst (San Francisco, CA)
Age: 41 | Gender: male
Wellbeing Before Policy: 6
Duration of Impact: 15.0 years
Commonness: 9/20
Statement of Opinion:
- Implementation will need careful monitoring to ensure its effectiveness.
- I support the policy as it has the potential to lower stillbirth numbers.
Wellbeing Over Time (With vs Without Policy)
| Year | With Policy | Without Policy |
|---|---|---|
| Year 1 | 7 | 6 |
| Year 2 | 7 | 6 |
| Year 3 | 8 | 6 |
| Year 5 | 8 | 7 |
| Year 10 | 9 | 8 |
| Year 20 | 9 | 8 |
Community Health Worker (Kansas City, MO)
Age: 35 | Gender: other
Wellbeing Before Policy: 5
Duration of Impact: 10.0 years
Commonness: 7/20
Statement of Opinion:
- The policy could reduce disparities in stillbirth rates in underserved communities.
- Access to education materials will help the community make informed health choices.
Wellbeing Over Time (With vs Without Policy)
| Year | With Policy | Without Policy |
|---|---|---|
| Year 1 | 6 | 5 |
| Year 2 | 7 | 5 |
| Year 3 | 8 | 6 |
| Year 5 | 9 | 7 |
| Year 10 | 9 | 8 |
| Year 20 | 9 | 8 |
Data Scientist (Phoenix, AZ)
Age: 50 | Gender: male
Wellbeing Before Policy: 7
Duration of Impact: 10.0 years
Commonness: 3/20
Statement of Opinion:
- Quality data will play a big role in understanding and preventing stillbirths.
- The HHS guidelines will be crucial for standardizing this data collection.
Wellbeing Over Time (With vs Without Policy)
| Year | With Policy | Without Policy |
|---|---|---|
| Year 1 | 7 | 7 |
| Year 2 | 8 | 7 |
| Year 3 | 9 | 8 |
| Year 5 | 9 | 8 |
| Year 10 | 9 | 9 |
| Year 20 | 10 | 9 |
Graduate Student (Boston, MA)
Age: 28 | Gender: female
Wellbeing Before Policy: 5
Duration of Impact: 10.0 years
Commonness: 11/20
Statement of Opinion:
- The fellowship program could provide more educational opportunities in my field.
- It's an important step toward reducing pregnancy-related complications.
Wellbeing Over Time (With vs Without Policy)
| Year | With Policy | Without Policy |
|---|---|---|
| Year 1 | 6 | 5 |
| Year 2 | 7 | 6 |
| Year 3 | 7 | 6 |
| Year 5 | 8 | 7 |
| Year 10 | 9 | 8 |
| Year 20 | 9 | 8 |
Cost Estimates
Year 1: $25000000 (Low: $20000000, High: $30000000)
Year 2: $25000000 (Low: $20000000, High: $30000000)
Year 3: $30000000 (Low: $25000000, High: $35000000)
Year 5: $30000000 (Low: $25000000, High: $35000000)
Year 10: $0 (Low: $0, High: $0)
Year 100: $0 (Low: $0, High: $0)
Key Considerations
- The bill requires substantial initial investment in data infrastructure which might require ongoing updates.
- Respective HHS departments must ensure collaboration across states for uniform data standards.
- Educational materials and programs will need to adapt over time based on the findings and data collected.